It’s Endometriosis Awareness Month. An entire month in which patients, charities, and organizations share information on the disease to raise much-needed awareness.
We desperately need increased awareness of endometriosis because so few people have heard of the disease, even though an estimated 176 million women worldwide — one in 10 of us — suffer from endometriosis.
Endometriosis is a disease in which the endometrial tissue, inner lining of the uterus, migrates to areas outside the uterus, like the ovaries or the fallopian tubes. This causes extreme pain in the pelvic region, and can also cause cysts, adhesions, heavy periods, bleeding between periods and infertility.
Those who have endo know all too well what it’s like to live with this life-changing disease. But it can be difficult to understand the impact endometriosis can have a women’s life, if you never suffered with it yourself. Here are 4 things to help you understand it:
1. Some might get pain only while they are on their periods, others will be in pain every day. You might be feeling good and then have a sudden onset of pain. Or you might have had a busy day one day, and the next be in pain. Sometimes, you can predict when your pain will be worse, but endometriosis usually is unpredictable.
2. Endo can affect you physically and mentally. Endometriosis interferes with so many different aspects of a woman’s life. The pain alone can make you miss time from work, miss out on a social life, affect relationships. Endometriosis can make you feel isolated, and you may feel as if your body is against you. Anger, frustration, sadness and fear are just a few of the emotions that can affect your mental health.
3. It will affect every woman differently. Endometriosis can be found anywhere from the vulva to your brain, and everywhere between. Because of this, even if you find two women with endometriosis in the same locations, the likelihood that they will be experiencing the exact same symptoms are relatively slim. Pain is the main symptom of endometriosis and will be felt by almost everyone, but other symptoms, such as pain during or after sex and infertility might not affect everyone.
4. There is no cure for endometriosis and there is no single medication that works for everyone. At some point you will be told that a hysterectomy, pregnancy, change to your dirt can help with endo. Treatment options come under three categories: surgery, hormone treatment or pain relief, and may include options otherwise used for cancer treatment, for example Lupron Depot. Some treatments are not easy on our bodies and coping with the side effects can sometimes be as difficult as coping with endometriosis itself.
Start raising awareness by talking and sharing your story, educate others, join an event, and take it to social media.
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